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  #1 (permalink)  
Old 15-06-08, 23:58
Brassed off's Avatar
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Default Hodgkin's Lymphoma

My best friend was diagnosed with Hodgkin's Lymphoma at 29 when she was pregnant with her second child.

Hodgkin's lymphoma - Wikipedia, the free encyclopedia

She was asked if she wanted to undergo chemotherapy whilst pregnant but decided against it until after her son was born. Her s**t of a husband decided he was going to leave her for another woman whilst she was pregnant, even though he knew her diagnosis

For the last fifteen years she has had chemotherapy and then it's gone into remission, then returned, more chemo and then into remission. With the last dose of chemo, she thought she was going to die it was so bad.

We were born in the next bed to each other in hospital and lived round the corner from each other and grew up together but we are so different in temperament - she's the feisty one

She has had stem cell treatment but it wasn't successful and she cannot face any more chemo.

The cancer is now terminal but she won't tell me how long they have given her.

This time last year, she was in a wheelchair but she has since discovered Spiritual Healing and the difference in her is dramatic. I just feel that every moment with her is precious now, even though we keep in touch, she lives miles away, I just can't get over the difference in her since the last time we met up.

Last week she did a midnight walk in aid of Cancer Research and she actually walked nine miles - even I can't do that

I'm so proud of her though - I don't know if I could be that tough

I really hope I don't meet up with her ex-husband though - I've not seen him since they split and I really don't know what I'd do
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Old 16-06-08, 01:49
gizmo111
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Default Re: Hodgkin's Lymphoma

She sounds like a very brave lady, who has been through an awful lot of heartache, both physically and emotionally. Her children must also be very proud of her.

If I was you, I would make the effort to visit sooner rather than later, while she is still quite active.

It maybe she doesn't want people to know her expected life span and just wants them to enjoy what time she has left, as normally as she can, or maybe she needs to talk about it face to face rather than phone etc.

As for the ex - she has probably been better off without him, if someone can leave when things are so difficult and scary, then they aren't worth the effort in the first place.

Tough times ahead Bo - Keep us informed.
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Old 18-06-08, 00:18
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Default Re: Hodgkin's Lymphoma

I agree Giz. I saw her last weekend and I'm going for the weekend in a few weeks time

Unfortunately, only her eldest knows that her cancer is terminal. She hasn't told her youngest, something which I'm going to try and rectify when I see her next. IMO the kids need to know to be able to come to terms with it - I'm sure if her youngest knew, he would make her last days ones to remember instead of giving her hell because he's a teenager. Personally, I wouldn't want my kids to find out from a relative after I'd gone - I would want to explain and discuss it with them beforehand but that's just me.

We have discussed it in great depth, face to face and on the 'phone with regard to her illness and the impact it will make when she's gone but I know her very well and I know that death is probably imminent without the chemo but I can't get a straight answer from her. When I go and see her, we are going to share a few glasses of wine and thrash it out - she doesn't know this yet - I will be subtle. I'm going to cook her a nice meal and then have it out with her

I've known her ex since secondary school and tbh, he did improve but IMO he was never good enough for her anyway. He's been crap with the kids since he left her and has since re-married - he sees them occasionally and spends little time with them and when he does, he doesn't spend a lot of time with them and just throws money at them - not my idea of a dad I'm afraid

Yeah, deffo tough times ahead I know Giz - I just wish I was a brave as her. I'm going to try and get her "au fait" with computers though coz I could do with her on IM some nights as I spend so much time online when I'm not doing other stuff. I'm going to write down exactly how to get her on Facebook and looking up stuff on the 'net so that she knows she's not alone.

She told me last time I saw her that the McMillan nurses are so busy that they haven't rung her for about four months - not their fault I know. They were brilliant with her at first and even paid some of her bills. I just wish sometimes that I lived in my home town again because I wouldn't let her have to deal with all the crap - I would do it for her.

She had a very bad time a few weeks ago - she had so much pain in her legs that she couldn't get out of bed and definitely needed a morphine injection. She shouted for her son but as it was 2am in the morning, he didn't hear her. She had forgotten to bring her 'phone into the bedroom so had to crawl out of her bed by her hands to get to the 'phone.

She rang the doctor on call but she didn't come until four hours later, meanwhile my mate laid on the floor in complete agony When the doctor arrived, my mate gave her hell and asked why she hadn't come sooner to see her as they knew that she is terminally ill. The answer was that the doctor had other patients to see I can appreciate this but surely the schedule could have been a bit more prioritised. Yes, I could understand to some extent how busy they must be but surely there would be more than one doctor on call and they would have been made aware of the fact that my mate was terminally ill

I am sooooo looking forward to going to see her for the weekend. I just need to show her how to relax and not be up and down all the time - something I am beginning to learn due to my fibromyalgia. Time is so precious especially in her instance. Stuff like cleaning the house is just so not important - making the most of the time you have left is priority
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Old 18-06-08, 00:33
gizmo111
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Default Re: Hodgkin's Lymphoma

I agree BO the children need to know, maybe you can help her with that.
How old are they? If as it seems she hasn't got long, what will be the arrangements for them. Have they family other than the father who will be about to support them?
Let the school know once the children are aware of the situation, so they can keep an eye out for them being upset/slipping behind, and can provvide support.
Check she has done practical things like make a will.
Ring the Macmillan nurses, and remind them she is ill and in need of support. See if they will fund a weekend away for her and the children or some other suitable treat.
You could help her make a life story book for the children, to remember her when she has gone (not that they'll forget). Or she could do it with the children. Theres a few ways of doing them - if you want some ideas, rather than just the standard photo album, give me a shout.

Tough times ahead BO, when you sort out the internet for her make sure you direct here so we can give her some support as well.

Keep us updated, you know where I am if you need a shoulder to cry on.
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Old 18-06-08, 00:55
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Default Re: Hodgkin's Lymphoma

Well I'm certainly going to try Giz

The eldest one is 20 and he went in to see her doctor when she was in the hospice when she had the big problems with her legs a few months ago. He was told everything but unfortunately, he won't tell anyone what he's been told - even her mum - I totally disagree with this as he's going to have major problems when he's older IMO. Unfortunately, he's away as he's joined the army so I'm not sure whether I will see him before my mate goes to meet her maker

I'm going to speak to my mate about her will when I go and see her.

She is very fortune in some respects as her sister is loaded so tries to get her away for a weekend in a nice lavish hotel which is fine but I really don't think she gets the emotional support from her sis that I would be able to give her.

Life storybook - I'm on with thanks hun. I started it when I first found out that the cancer was terminal - I only found that out because she sent a text to her son and sent it to me by mistake - not a good idea because I was at work at the time. We have a few mutual friends but none of them rang me to tell me what was really going on. This is the trouble when you move away from your home town and don't keep in touch.

I can't tell you how much I'm looking forward to seeing her

I'm not sure whether I will show her this thread when I get to see her although I'm tempted as it may make her realise that the written word can have more impact than a face to face confronatation
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Old 20-07-08, 22:27
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Default Re: Hodgkin's Lymphoma

Well, I've been to see my mate this weekend and tbh, you would have no idea that she is that ill. She's just like she always used to be, constantly on the go, never stopping. She says that the steroids and sleeping tablets have helped although she doesn't always take the sleeping tablets as she's scared of not waking up again.

The only sign of illness is the fact that the steroids have made her stomach bloat and have made her eyes very puffy, with big lumps on the outer part of each eye which get bigger as she gets more tired.

I have spoken to her youngest son quietly and asked him if he really knows how ill his mum is. He's a very bright 14 year old and he knows that she has cancer and has guessed from "listening in" on conversations that it will eventually take her life. He is a typical teenager and enjoys winding his mum up but I've told him just to leave it and let her have a rant without rising to the bait. I know he listened to me as the next day he was a nice as pie with her He's very good and is always offering to do things for both her and me. He carried my overnight bag into the house for me without being asked - he's just that sort of lad.

However, my mate has a very fiery temper and always has had. Her fuse is even shorter now so on Saturday night after much wine drinking by me (she had a couple of lagers too!), I tackled her about it and said that it can't be doing her any good to lose it constantly and she said that she knew she was doing it but couldn't help it. She is angry at the world for taking her so soon and is wondering what she has done to deserve this. She's a good mum and has brought her kids up well considering she had to do it on her own.

I have suggested counselling but she says she doesn't feel she needs it. She is adamant about this and I knew that there was no way was I going to change her mind.

I don't know how I managed to hold it together this weekend but I did. We only went out for a bit of shopping Saturday and the rest of the time, we just sat and talked and laughed and reminisced and it was just like the old days I'd forgotten just how much she can gab - and I thought I was gobby

I have downloaded MSN for her and showed her son how to use it but no matter how hard I tried, she just doesn't do computers at all and wouldn't even try it. I've told her son to open it on his computer anyway and if I see him online, I'll try and get him to go and get her to come and have a chat - I can but try

For me, a best mate is someone you know you can be yourself with, bear your soul to and know that it won't go any further, show yourself up totally and laugh about it the next day and is always there for you no matter what........

As a musician, I desperately wanted to ask her what music she wanted played at her funeral although knowing her, it will probably all be sorted anyway (she's even more organised than I am) but somehow I couldn't bring myself to even ask the question.

The hardest thing was saying goodbye to her at her gate as I always think that it may be my last memory of her. I managed to be strong whilst I drove home from her house but as soon as I walked into my own house and my dog went absolutely ballistic (he'd missed me obviously), I just cuddled him and cried into his fur. It's been a tough weekend but I have to admire her strength - I don't know if I could be that tough.
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